NIH Office of Rare Diseases (ORD)

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The Office of Rare Diseases (ORD) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORD Web site provides information for patients and their families with rare diseases and about NIH- and ORD-sponsored biomedical research and scientific conferences. If you cannot find the specific information that you seek, feel free to contact us.


Rare Diseases Information (More...) Rare Diseases and Related Terms NLM Gateway PubMed Office of Orphan Products Development, FDA	Patient Advocacy Groups (More...) DIRLINE Genetic Alliance National Organization for Rare Disorders (NORD)	Research & Clinical Trials (More...) ClinicalTrials.gov Cancer.gov: Clinical Trials Clinical Center Clinical Trials NIH-maintained Database of Scientific Projects (CRISP) The Rare Diseases Clinical Research Network Bench-to-Bedside Awards Intramural Collaborations
Genetic & Rare Diseases Information Center (GARD) (More...) Search GARD for Disease Information Contact a GARD Information Specialists (en Español) Genetic and Rare Diseases Information Center Brochure (en Español) The "About GARD" Card (en Español) Information about Rare Cancers	ORD Co-funded Scientific Conferences (More...) Prion Strains: Origins, Mechanisms, and Implications for Disease Allogeneic Hematopoietic Stem Cell Transplantation for Primary Immune Deficiencies: Feasibility and Mechanisms of Immune Reconstitution Radiation Imaging for Children Undergoing Cancer Treatment: Quality, Safety, and Risks NICHD Sixth Structural Birth Defects Meeting	Genetics Information & Services (More...) Online Mendelian Inheritance in Man (OMIM) Gene Tests Collaboration, Education, and Test Translation (CETT) Program for Rare Genetic Diseases Genetics Home Reference (GHR) CDC Laboratory Practice Evaluation and Genomics Branch (LPEGB)
Research Resources (More...) NIH Office of Technology Transfer - Rare Diseases NIH Office of Technology Transfer - Neglected Diseases Grants – Office of Extramural Research National Disease Research Interchange (NDRI), National Rare Disease Biospecimen Resource (NRDBR) Research Training and Scientific Resources at NIH	Patient Travel & Lodging (More...) Angel Flight at NIH Mercy Medical Airlift Air Charity Network (ACN) The Children’s Inn at NIH Edmond J. Safra Family Lodge at NIH	Reports & Publications (More...) Biennial Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2006 Annual Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2005 ORD Brochure
Rare Disease News (More...) Newborn Screening Saves Lives Act of 2007’’ ICORD 2008: Global Approaches for Rare Diseases Research and Orphan Products Development – Meeting Announcement Patient Advocacy Teleconference: NIH Undiagnosed Diseases Program ORD recompetition of Rare Diseases Clinical Research Network Other Rare Disease Conferences site	Recursos en Español (More...) GobiernoUSA.gov El Centro de Información sobre Enfermedades Genéticas y Raras Oficina Nacional de Genómica en Salud y Prevención de Enfermades de los Centros para el Control y Prevención de Enfermedades (en español)

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