NIH Office of Rare Diseases Research (ORDR)

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NIH issues request for information (RFI) on plan to develop the Genetic Testing Registry (GTR)


Rare Diseases Information Talking Glossary of Genetics Rare Diseases and Related Terms NLM Gateway PubMed Office of Orphan Products Development, FDA More...	Patient Advocacy Groups DIRLINE Genetic Alliance National Organization for Rare Disorders (NORD) More...	Research & Clinical Trials Bench-to-Bedside Awards NIH Research Portfolio Online Reporting Tool Expenditure & Results (RePORTER) ClinicalTrials.gov Cancer.gov: Clinical Trials Clinical Center Clinical Trials The Rare Diseases Clinical Research Network Undiagnosed Diseases Program Therapeutics for Rare and Neglected Diseases Program More...
Genetic & Rare Diseases Information Center (GARD) Search GARD for Disease Information Contact a GARD Information Specialist (en español) Genetic and Rare Diseases Information Center Brochure (en español) The "About GARD" Card (en español) Information about Rare Cancers More...	ORDR Co-funded Scientific Conferences Etiology of cMyc Chromosomal Translocations RNase H 2010 More...	Genetics Information & Services Collaboration, Education, and Test Translation (CETT) Program for Rare Genetic Diseases Family Health Portrait Tool Online Mendelian Inheritance in Man (OMIM) Gene Tests Genetics Home Reference (GHR) CDC Laboratory Practice Evaluation and Genomics Branch (LPEGB) More...
Research Resources Human Biospecimen Database Grants – Office of Extramural Research National Disease Research Interchange (NDRI), National Rare Disease Biospecimen Resource (NRDBR) NIH Office of Technology Transfer - Rare Diseases NIH Office of Technology Transfer - Neglected Diseases More...	Patient Travel & Lodging Angel Flight at NIH Mercy Medical Airlift Air Charity Network (ACN) The Children’s Inn at NIH Edmond J. Safra Family Lodge at NIH More...	Reports & Publications Biennial Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2006 Annual Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2005 ORDR Brochure More...
Rare Disease News FDA Office of Orphan Products Development Request for Applications Registration is now open for the 2nd Conference on Clinical Research for Rare Diseases May 2010 edition of ORDR's Focus on Rare Diseases newsletter Google Rare Disease RSS Feed National Institutes of Health (NIH) News Releases More...	Recursos en Español El Centro de Información sobre Enfermedades Genéticas y Raras (GARD, sus siglas en inglés) More...

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