Dancing eyes-dancing feet syndrome
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Dancing eyes-dancing feet syndrome, also known as opsoclonus myoclonus syndrome, is a rare movement disorder characterized by associated ocular (eye), behavioral, sleep, and language disturbances. The onset is usually abrupt, often severe, and can become chronic.[1] The syndrome often occurs in association with tumors or following a viral infection.[2][3] Treatment may include corticosteroids or ACTH (adrenocorticotropic hormone). In cases where there is a tumor present, treatment such as chemotherapy, surgery, or radiation may be required. With treatment of the underlying cause of the disorder, there may be an improvement of symptoms.[2] Relaspses are common and may occur without warning.[2][3]
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More Detailed Information (Found 6 resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
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General
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The National Cancer Institute provides the most current information on cancer for patients, health professionals, and the general public. Click on the link to view information on this topic.
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The National Institute of Neurological Disorders and Stroke (NINDS) collects and disseminates research information related to neurological disorders. Click on the link to view information on this topic.
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The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Dancing eyes-dancing feet syndrome. Click on the link to go to OMIM and review these resources.
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Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge. Click on the link to read information on this topic.
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PubMed is a searchable database of medical literature and lists journal articles that discuss Dancing eyes-dancing feet syndrome. Click on the link to view a sample search on this topic.
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NLM Gateway (Found 1 resource)
A tool to search across multiple resources offered on the National Library of Medicine's Website
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NLM Gateway allows users to search many resources offered on the National Library of Medicine's Web site at once to quickly find more information about this condition. Some of the resources may be a duplicate of the resources listed on this page. To search NLM Gateway, click on the link; the condition name will already be in the search box, so you can just click the “Search” button.
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Umbrella Organizations | Disease-Specific Organizations | Live Chat/E-mail Lists | Parent Matching Organizations
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Support Groups (Found 8 resources)
Groups providing a wide range of services, supportive resources, and information
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Umbrella Organizations
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Genetic Alliance
4301 Connecticut Avenue NW Suite 404 Washington, DC 20008-2369 Telephone: 202-966-5557 Fax: 202-966-8553 E-mail: info@geneticalliance.org Web site: http://www.geneticalliance.org
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National Organization for Rare Disorders (NORD)
55 Kenosia Avenue PO Box 1968 Danbury, CT 06813-1968 Toll-free: 1-800-999-6673 (voicemail only) Telephone: 203-744-0100 TTY: 203-797-9590 Fax: 203-798-2291 E-mail: orphan@rarediseases.org Web site: http://www.rarediseases.org/
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Disease-Specific Organizations
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The Opsoclonus Myoclonus Syndrome Support Network, Inc.
2116 Casa Linda Drive West Covina, CA 91791 Phone: 626-919-2448 Email: sandragreenberg@hotmail.com Web: http://www.omsupportnetwork.org/
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Opsoclonus - Myoclonus U.S.A. and International
c/o National Pediatric Myoclonus Center P.O. Box 19643 Springfield, IL 62794-9643 Phone: 217-545-7635 Email: omsusa@siumed.edu Web: http://www.omsusa.org/index.htm
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Dancing Eye Syndrome Support Trust
78 Quantock Road Worthing West Sussex BN13 2HQ Phone: 01925 654654 Email: support@dancingeyes.org.uk Web: http://www.dancingeyes.org.uk
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Live Chat/E-mail Lists
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
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Parent Matching Organizations
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Madisons Foundation
P.O. Box 241956 Los Angeles, CA 90024 Telephone: 310-264-0826 Fax: 310-264-4766 E-mail: getinfo@madisonsfoundation.org Web site: http://www.madisonsfoundation.org/
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Clinical Trials & Research (Found 1 resource)
Resources where you may find research studies and clinical trials
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ClinicalTrials.gov lists trials that are studying or have studied Dancing eyes-dancing feet syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
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