Hairy cell leukemia

Genetic and Rare Diseases Information Center (GARD)

Leukemic reticuloendotheliosis
HCL

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Hairy cell leukemia
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For more information about Hairy cell leukemia click on the boxes below:

More Detailed Information	NLM Gateway	Medical Products	Scientific Conferences	Support Groups	Clinical Trials & Research


More Detailed Information (Found 1 resource) Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates General PubMed is a searchable database of medical literature and lists journal articles that discuss Hairy cell leukemia. Click on the link to view a sample search on this topic.

NLM Gateway (Found 1 resource)
A tool to search across multiple resources offered on the National Library of Medicine's Website

- NLM Gateway allows users to search many resources offered on the National Library of Medicine's Web site at once to quickly find more information about this condition. Some of the resources may be a duplicate of the resources listed on this page. To search NLM Gateway, click on the link; the condition name will already be in the search box, so you can just click the “Search” button.

Medical Products (Found 2 resources)

U.S. Food and Drug Administration

The Office of Orphan Products Development (OOPD)

The medications listed in the table below have been approved by the Food and Drug Administration (FDA) for treatment of this condition. The FDA Office of Orphan Products Development designates "orphan products" for those that treat rare diseases affecting fewer than 200,000 Americans. The table below may not be an exhaustive list of drugs or products used to treat this condition. There may be other products available that are not considered orphan products. To search all FDA approved drugs, visit Drugs@FDA You can find orphan products used to treat other conditions by searching the Orphan Drug Product Designation database.

Generic Name	Trade Name (Manufacturer Name)	Indication	Resources
Cladribine	Leustatin (injection) (Ortho Biotech)	Treatment of hairy cell leukemia.	Daily Med MedlinePlus
Pentostatin for injection	Nipent® (SuperGen, Inc.)	Single agent treatment for adult patients with alpha-interferon-refractory hairy cell leukemia.	Daily Med MedlinePlus

Scientific Conferences (Found 1 resource)
Completed and upcoming scientific conferences and programs that have been sponsored by the National Institutes of Health

Upcoming Conferences
- Treatment of Hairy Cell Leukemia in its Second Half-Century, April 26, 2010 - April 27, 2010
  Location: Wilson Hall (Building 1), 3rd floor, Bethesda, MD
  Description: 1) Disseminate current knowledge of the standard treatment of hairy cell leukemia (HCL), 2) Identify the evidence (or lack thereof) with which current treatment practices are based, 3) determine needs and opportunities for clinical research to improve HCL treatment, 4) disseminate results of newer diagnostic techniques, including flow cytometry, PCR and serum markers, to allow decreased reliance on bone marrow biopsy, 5) discuss recent advances in HCL biology, including the molecular characterization of HCL cells with implications for disease origination/prognosis, 6) discuss new treatments for relapse/refractory disease, including investigational agents 7) improve patient access to treatment and clinical trials, and 8) discuss the evolving activities of the HCL Consortium, including establishing a new HCL website to improve access to knowledge, care givers, treatment and clinical trials. For additional information please contact Dr. Robert Kreitman at kreitmar@mail.nih.gov

Umbrella Organizations \| Live Chat/E-mail Lists \| Parent Matching Organizations
Support Groups (Found 5 resources) Groups providing a wide range of services, supportive resources, and information Umbrella Organizations Genetic Alliance 4301 Connecticut Avenue NW Suite 404 Washington, DC 20008-2369 Telephone: 202-966-5557 Fax: 202-966-8553 E-mail: info@geneticalliance.org Web site: http://www.geneticalliance.org National Organization for Rare Disorders (NORD) 55 Kenosia Avenue PO Box 1968 Danbury, CT 06813-1968 Toll-free: 1-800-999-6673 (voicemail only) Telephone: 203-744-0100 TTY: 203-797-9590 Fax: 203-798-2291 E-mail: orphan@rarediseases.org Web site: http://www.rarediseases.org/ Live Chat/E-mail Lists The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more. RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more. Parent Matching Organizations Madisons Foundation P.O. Box 241956 Los Angeles, CA 90024 Telephone: 310-264-0826 Fax: 310-264-4766 E-mail: getinfo@madisonsfoundation.org Web site: http://www.madisonsfoundation.org/

Umbrella Organizations | Live Chat/E-mail Lists | Parent Matching Organizations

Support Groups (Found 5 resources)
Groups providing a wide range of services, supportive resources, and information

Umbrella Organizations
- Genetic Alliance
  4301 Connecticut Avenue NW
  Suite 404
  Washington, DC 20008-2369
  Telephone: 202-966-5557
  Fax: 202-966-8553
  E-mail: info@geneticalliance.org
  Web site: http://www.geneticalliance.org
- National Organization for Rare Disorders (NORD)
  55 Kenosia Avenue
  PO Box 1968
  Danbury, CT 06813-1968
  Toll-free: 1-800-999-6673 (voicemail only)
  Telephone: 203-744-0100
  TTY: 203-797-9590
  Fax: 203-798-2291
  E-mail: orphan@rarediseases.org
  Web site: http://www.rarediseases.org/
Live Chat/E-mail Lists
- The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
Parent Matching Organizations
- Madisons Foundation
  P.O. Box 241956
  Los Angeles, CA 90024
  Telephone: 310-264-0826
  Fax: 310-264-4766
  E-mail: getinfo@madisonsfoundation.org
  Web site: http://www.madisonsfoundation.org/


Clinical Trials & Research (Found 1 resource) Resources where you may find research studies and clinical trials ClinicalTrials.gov lists trials that are studying or have studied Hairy cell leukemia. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

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