Cysticercosis

Genetic and Rare Diseases Information Center (GARD)

Taeniasis
Neurocysticercosis
Submacular Cysticercosis

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Cysticercosis
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For more information about Cysticercosis click on the boxes below:

More Detailed Information	NLM Gateway	Medical Products	Scientific Conferences	Support Groups	Clinical Trials & Research

More Detailed Information (Found 2 resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates

General
- eMedicine provides information on this topic. Click on the link to view this information. You may need to register to view the medical textbook, but registration is free
- PubMed is a searchable database of medical literature and lists journal articles that discuss Cysticercosis. Click on the link to view a sample search on this topic.

NLM Gateway (Found 1 resource)
A tool to search across multiple resources offered on the National Library of Medicine's Website

- NLM Gateway allows users to search many resources offered on the National Library of Medicine's Web site at once to quickly find more information about this condition. Some of the resources may be a duplicate of the resources listed on this page. To search NLM Gateway, click on the link; the condition name will already be in the search box, so you can just click the “Search” button.

Medical Products (Found 1 resource)

U.S. Food and Drug Administration

The Office of Orphan Products Development (OOPD)

The medications listed in the table below have been approved by the Food and Drug Administration (FDA) for treatment of this condition. The FDA Office of Orphan Products Development designates "orphan products" for those that treat rare diseases affecting fewer than 200,000 Americans. The table below may not be an exhaustive list of drugs or products used to treat this condition. There may be other products available that are not considered orphan products. To search all FDA approved drugs, visit Drugs@FDA You can find orphan products used to treat other conditions by searching the Orphan Drug Product Designation database.

Generic Name	Trade Name (Manufacturer Name)	Indication	Resources
Albendazole	Albenza® (GlaxoSmithKline)	Treatment of cystic hydatid disease of the liver, lung, and peritoneum, caused by the larval form of the dog tapeworm, Echinococcus granulosus.	Daily Med

Upcoming Conferences \| Past Conferences
Scientific Conferences (Found 3 resources) Completed and upcoming scientific conferences and programs that have been sponsored by the National Institutes of Health Upcoming Conferences Formation of a Consortium to Develop Common Protocols and Procedure for the Study of Neurocysticercosis in North America, Winter 2010 Description: This planning meeting will address the following goals: (1) development of a database and registry for neurocysticercosis seen in the United States; (2) formation of a consortium of a minimum of 6 sites and maximum of 12 sites willing and able to participate; (3) determination of what studies can be performed given the types of patient seen; (4) outline of protocols that all sites can reasonably follow; and (5) determination of administrative details. The plan or protocol developed will be presented to others who would find benefit in taking part in a study protocol. Past Conferences Treatment of Neurocysticercosis, June 22, 2005 - June 23, 2005 Location: El Pueblo Hotel, Lima Description: Cysticercosis, the most common cause of adult onset epilepsy in the third world, is due to infection with the cystic larval form of the intestinal-dwelling tapeworm, <i>Taenia solium. A conference on the treatment of neurocysticercosis was particularly opportune because the recent publication in the New England Journal of Medicine of a blinded, controlled randomized treatment trial of parenchymal cysticercosis unequivocally demonstrated a medical benefit of treatment. This study added to a body of evolving evidence that treatment is medically indicated. A conference to reassess the scientific bases of treatment, to determine what is known and not known, and to design trials or studies to answer questions was timely. The goals of this scientific conference were to critically evaluate the knowledge upon which treatment decisions are based in the various forms of cysticercosis; to define gaps in knowledge; and to suggest studies, trials, or approaches that are required to answer the most pressing questions. NEUROLOGY 2006;67:1120–1127 Workshop on Neurocysticercosis, April 15, 1997

Upcoming Conferences | Past Conferences

Scientific Conferences (Found 3 resources)
Completed and upcoming scientific conferences and programs that have been sponsored by the National Institutes of Health

Upcoming Conferences
- Formation of a Consortium to Develop Common Protocols and Procedure for the Study of Neurocysticercosis in North America, Winter 2010
  Description: This planning meeting will address the following goals: (1) development of a database and registry for neurocysticercosis seen in the United States; (2) formation of a consortium of a minimum of 6 sites and maximum of 12 sites willing and able to participate; (3) determination of what studies can be performed given the types of patient seen; (4) outline of protocols that all sites can reasonably follow; and (5) determination of administrative details. The plan or protocol developed will be presented to others who would find benefit in taking part in a study protocol.
Past Conferences
- Treatment of Neurocysticercosis, June 22, 2005 - June 23, 2005
  Location: El Pueblo Hotel, Lima
  Description: Cysticercosis, the most common cause of adult onset epilepsy in the third world, is due to infection with the cystic larval form of the intestinal-dwelling tapeworm, <i>Taenia solium. A conference on the treatment of neurocysticercosis was particularly opportune because the recent publication in the New England Journal of Medicine of a blinded, controlled randomized treatment trial of parenchymal cysticercosis unequivocally demonstrated a medical benefit of treatment. This study added to a body of evolving evidence that treatment is medically indicated. A conference to reassess the scientific bases of treatment, to determine what is known and not known, and to design trials or studies to answer questions was timely. The goals of this scientific conference were to critically evaluate the knowledge upon which treatment decisions are based in the various forms of cysticercosis; to define gaps in knowledge; and to suggest studies, trials, or approaches that are required to answer the most pressing questions. NEUROLOGY 2006;67:1120–1127
- Workshop on Neurocysticercosis, April 15, 1997

Umbrella Organizations \| Live Chat/E-mail Lists \| Parent Matching Organizations
Support Groups (Found 5 resources) Groups providing a wide range of services, supportive resources, and information Umbrella Organizations Genetic Alliance 4301 Connecticut Avenue NW Suite 404 Washington, DC 20008-2369 Telephone: 202-966-5557 Fax: 202-966-8553 E-mail: info@geneticalliance.org Web site: http://www.geneticalliance.org National Organization for Rare Disorders (NORD) 55 Kenosia Avenue PO Box 1968 Danbury, CT 06813-1968 Toll-free: 1-800-999-6673 (voicemail only) Telephone: 203-744-0100 TTY: 203-797-9590 Fax: 203-798-2291 E-mail: orphan@rarediseases.org Web site: http://www.rarediseases.org/ Live Chat/E-mail Lists The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more. RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more. Parent Matching Organizations Madisons Foundation P.O. Box 241956 Los Angeles, CA 90024 Telephone: 310-264-0826 Fax: 310-264-4766 E-mail: getinfo@madisonsfoundation.org Web site: http://www.madisonsfoundation.org/

Umbrella Organizations | Live Chat/E-mail Lists | Parent Matching Organizations

Support Groups (Found 5 resources)
Groups providing a wide range of services, supportive resources, and information

Umbrella Organizations
- Genetic Alliance
  4301 Connecticut Avenue NW
  Suite 404
  Washington, DC 20008-2369
  Telephone: 202-966-5557
  Fax: 202-966-8553
  E-mail: info@geneticalliance.org
  Web site: http://www.geneticalliance.org
- National Organization for Rare Disorders (NORD)
  55 Kenosia Avenue
  PO Box 1968
  Danbury, CT 06813-1968
  Toll-free: 1-800-999-6673 (voicemail only)
  Telephone: 203-744-0100
  TTY: 203-797-9590
  Fax: 203-798-2291
  E-mail: orphan@rarediseases.org
  Web site: http://www.rarediseases.org/
Live Chat/E-mail Lists
- The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
Parent Matching Organizations
- Madisons Foundation
  P.O. Box 241956
  Los Angeles, CA 90024
  Telephone: 310-264-0826
  Fax: 310-264-4766
  E-mail: getinfo@madisonsfoundation.org
  Web site: http://www.madisonsfoundation.org/


Clinical Trials & Research (Found 1 resource) Resources where you may find research studies and clinical trials ClinicalTrials.gov lists trials that are studying or have studied Cysticercosis. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

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