Genetic and Rare Diseases Information Center (GARD)


Other names people use for this condition
  • Christmas disease
  • Factor IX deficiency
  • HEM B
Printer Friendly printer friendly version
Home > Genetic & Rare Diseases Information Center (GARD) > Hemophilia B



Hemophilia B
Please note that the links contained on this search results page may take you to sites outside of the NIH. (See Disclaimer under Site Policies for details.)
These Web pages are updated as the Genetic and Rare Diseases Information Center receives questions and as new information becomes available. If you don’t see many information resources on this page, it may be because the Information Center hasn’t yet received a question about this condition.

If you have a question, please contact us — we will answer your question and update this page with new resources and information.


Questions & Answers
If you would like to submit a question, Contact GARD
Show All Resources


For more information about Hemophilia B click on the boxes below:
More Detailed Information NLM Gateway Medical Products Support Groups Clinical Trials & Research
 
More Detailed Information (Found 3 resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates

  • General

    • Genetics Home Reference (GHR) contains a condition summary on Hemophilia B. Click on the link to go to GHR and review this summary.
    • The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Hemophilia B. Click on the link to go to OMIM and review these resources.
    • PubMed is a searchable database of medical literature and lists journal articles that discuss Hemophilia B. Click on the link to view a sample search on this topic.
 
NLM Gateway (Found 1 resource)
A tool to search across multiple resources offered on the National Library of Medicine's Website

    • NLM Gateway allows users to search many resources offered on the National Library of Medicine's Web site at once to quickly find more information about this condition. Some of the resources may be a duplicate of the resources listed on this page. To search NLM Gateway, click on the link; the condition name will already be in the search box, so you can just click the “Search” button.
 
Medical Products (Found 4 resources)




  • The medications listed in the table below have been approved by the Food and Drug Administration (FDA) for treatment of this condition. The FDA Office of Orphan Products Development designates "orphan products" for those that treat rare diseases affecting fewer than 200,000 Americans. The table below may not be an exhaustive list of drugs or products used to treat this condition. There may be other products available that are not considered orphan products. To search all FDA approved drugs, visit Drugs@FDA You can find orphan products used to treat other conditions by searching the Orphan Drug Product Designation database.


    Generic NameTrade Name
    (Manufacturer Name)    		IndicationResources
    Coagulation Factor IXMononine®
    (CSL Behring)    		Prevention and control of bleeding in factor IX deficiency, also known as hemophilia B or Christmas disease.Daily Med
    Coagulation Factor IX (human)AlphaNine®
    (GRIFOLS)    		For use as replacement therapy in patients with hemophilia B for the prevention and control of bleeding episodes, and during surgery to correct defective hemostasis.
    Coagulation Factor IX (Recombinant)BeneFix®
    (Wyeth Pharmaceuticals, Inc.)    		For the control and prevention of hemorrhagic episodes in patients with hemophilia B (congenital factor IX deficiency and Christmas disease), including control and prevention of bleeding in surgical settings.
    Coagulation Factor VIIa (Recombinant)NovoSeven® RT
    (Novo Nordisk, Inc.)    		Treatment of bleeding episodes in patients with Factor VII DeficiencyDaily Med
 Umbrella Organizations | Live Chat/E-mail Lists | Parent Matching Organizations
Support Groups (Found 5 resources)
Groups providing a wide range of services, supportive resources, and information

  • Umbrella Organizations

  • Live Chat/E-mail Lists

    • The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
    • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
  • Parent Matching Organizations

 
Clinical Trials & Research (Found 1 resource)
Resources where you may find research studies and clinical trials

    • ClinicalTrials.gov lists trials that are studying or have studied Hemophilia B. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Department of Health & Human Services National Institutes of Health USA.gov - government made easy


Note: If you need help accessing information in different file formats such as PDF, MP3, see Viewers, Players, and Plug-ins.