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Genetic and Rare Diseases Information Center (GARD)
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NHGRI Health Information Page
Other names people use for this condition
Hereditary prostate cancer
Prostate cancer, familial
Prostate cancer, hereditary
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Genetic & Rare Diseases Information Center (GARD)
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Familial prostate cancer
Familial prostate cancer
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These Web pages are updated as the Genetic and Rare Diseases Information Center receives questions and as new information becomes available. If you don’t see many information resources on this page, it may be because the Information Center hasn’t yet received a question about this condition.
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For more information about Familial prostate cancer click on the boxes below:
More Detailed Information
NLM Gateway
Medical Products
Services
Support Groups
Clinical Trials & Research
More Detailed Information (Found 6 resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
General
You can obtain comprehensive information on this topic from the
Centers for Disease Control and Prevention
(CDC). The CDC is recognized as the lead federal agency for developing and applying disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of the people of the United States. Click on the link to read information on this condition.
eMedicine
provides information on this topic. Click on the link to view this information. You may need to register to view the medical textbook, but registration is free
The
National Cancer Institute
provides the most current information on cancer for patients, health professionals, and the general public. Click on the link to view information on this topic.
The
National Human Genome Research Institute's
(NHGRI) mission encompasses a broad range of studies aimed at understanding the structure and function of the human genome and its role in health and disease. Click on the link to view the information page on this topic.
The
Online Mendelian Inheritance in Man (OMIM)
database contains genetics resources that discuss Familial prostate cancer. Click on the link to go to OMIM and review these resources.
PubMed
is a searchable database of medical literature and lists journal articles that discuss Familial prostate cancer. Click on the link to view a sample search on this topic.
NLM Gateway (Found 1 resource)
A tool to search across multiple resources offered on the National Library of Medicine's Website
NLM Gateway
allows users to search many resources offered on the National Library of Medicine's Web site at once to quickly find more information about this condition. Some of the resources may be a duplicate of the resources listed on this page. To search NLM Gateway, click on the link; the condition name will already be in the search box, so you can just click the “Search” button.
Medical Products (Found 1 resource)
U.S. Food and Drug Administration
The Office of Orphan Products Development (OOPD)
The medications listed in the table below have been
approved
by the
Food and Drug Administration
(FDA) for treatment of this condition. The FDA Office of Orphan Products Development designates "
orphan products
" for those that treat
rare diseases affecting fewer than 200,000 Americans
. The table below may not be an exhaustive list of drugs or products used to treat this condition. There may be other products available that are not considered orphan products. To search all FDA approved drugs, visit
Drugs@FDA
You can find orphan products used to treat other conditions by searching the
Orphan Drug Product Designation database
.
Generic Name
Trade Name
(Manufacturer Name)
Indication
Resources
Mitoxantrone HCl
Novantrone® (injection)
((OSI) Pharmaceuticals)
Treatment of acute myelogenous leukemia, also referred to as acute nonlymphocytic leukemia.
Services (Found 1 resource)
Links to Web sites that offer services, such as tools to locate specialists, specialty clinics, genetic services, and genetic testing laboratories
Testing
GeneTests
lists laboratories offering clinical genetic testing for this condition. Clinical genetic tests are ordered to help diagnose a person or family and to aid in decisions regarding medical care or reproductive issues. Talk to your health care provider or a genetic professional to learn more about your testing options.
Umbrella Organizations
|
Live Chat/E-mail Lists
|
Parent Matching Organizations
Support Groups (Found 5 resources)
Groups providing a wide range of services, supportive resources, and information
Umbrella Organizations
Genetic Alliance
4301 Connecticut Avenue NW
Suite 404
Washington, DC 20008-2369
Telephone: 202-966-5557
Fax: 202-966-8553
E-mail:
info@geneticalliance.org
Web site:
http://www.geneticalliance.org
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Toll-free: 1-800-999-6673 (voicemail only)
Telephone: 203-744-0100
TTY: 203-797-9590
Fax: 203-798-2291
E-mail:
orphan@rarediseases.org
Web site:
http://www.rarediseases.org/
Live Chat/E-mail Lists
The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called
The NORD Rare Disease Community
. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
RareShare
is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
Parent Matching Organizations
Madisons Foundation
P.O. Box 241956
Los Angeles, CA 90024
Telephone: 310-264-0826
Fax: 310-264-4766
E-mail:
getinfo@madisonsfoundation.org
Web site:
http://www.madisonsfoundation.org/
Clinical Trials & Research (Found 3 resources)
Resources where you may find research studies and clinical trials
ClinicalTrials.gov
lists trials that are studying or have studied Familial prostate cancer. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
GeneTests
lists laboratories offering research genetic testing for this condition. Research genetic tests may be used to find disease-causing genes, learn how genes work, or aid in the understanding of a genetic disorder. In many cases test results are not shared with the patient or physician. Talk to your health care provider or a genetic professional to learn more about research testing for this condition.
The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. To search for studies, click on the link and enter the disease name in the "Terms Search" box. Then click "Submit Query".
Link:
http://projectreporter.nih.gov/reporter.cfm
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