Genetic and Rare Diseases Information Center (GARD)


Other names people use for this condition
  • Dercum disease
  • Anders’ syndrome
  • Dercum-Vitaut syndrome
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Adiposis dolorosa
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Dercum disease - also known as adiposis dolorosa, Anders’ syndrome or Dercum-Vitaut syndrome - is a rare condition that is characterized by multiple, painful fatty lipomas (benign, fatty tumors) that occur most often in post-menopausal, obese women of middle age. However, although it is 20 times more common in women, 16 percent of the reported cases are males and it can also occur in people who are not obese[2].

References
  1. Yosipovitch, G. et.al.. Obesity and the skin: Skin physiology and skin manifestations of obesity. Journal of the American Academy of Dermatology, Volume 56, Issue 6. June 2007.
  2. Learning about Dercum Disease. National Human Genome Research Institute Web site. March 2007 Available at: http://www.genome.gov/17516629. Accessed November 5, 2007.

Questions & Answers (Found 1 Question)
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For more information about Adiposis dolorosa click on the boxes below:
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More Detailed Information (Found 7 resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates

  • General

    • Articles from the eMedicine Web site provide further information about Dercum disease at the following link.  You may need to register with eMedicine to view these articles, but registration is free.
      http://www.emedicine.com/derm/topic839.htm
    • MedlinePlus, a Web site designed by the National Library of Medicine Web site to help you research your health questions, provides more information about this topic. Click on the link to view this information.
    • The National Human Genome Research Institute's (NHGRI) mission encompasses a broad range of studies aimed at understanding the structure and function of the human genome and its role in health and disease. Click on the link to view the information page on this topic.
    • The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
    • The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Adiposis dolorosa. Click on the link to go to OMIM and review these resources.
    • Orphanet is a database dedicated to information on rare diseases and orphan drugs.  Access to this database is free of charge.  Click on the link to read information on this topic.
    • PubMed is a searchable database of medical literature and lists journal articles that discuss Adiposis dolorosa. Click on the link to view a sample search on this topic.
 
NLM Gateway (Found 2 resources)
A tool to search across multiple resources offered on the National Library of Medicine's Website

    • NLM Gateway allows users to search many resources offered on the National Library of Medicine's Web site at once to quickly find more information about this condition. Some of the resources may be a duplicate of the resources listed on this page. To search NLM Gateway, click on the link; the condition name will already be in the search box, so you can just click the “Search” button.
    • The Open Directory Project is a large, comprehensive human-edited directory of the Web. It is constructed and maintained by a global community of volunteer editors. They have a Web page with links to information about Dercum disease at the following link.
      http://dmoz.org/Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease/
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Support Groups (Found 11 resources)
Groups providing a wide range of services, supportive resources, and information
 
Clinical Trials & Research (Found 1 resource)
Resources where you may find research studies and clinical trials

  • Patient Registry

    • The Dercums Data organization is keeping a registry of those people who have a diagnosis for Dercum's Disease and their symptoms.  To learn more about this registry, visit the following link:
      http://dercums_data.tripod.com/registry.html

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