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Registration is now open for the 3rd Conference on Clinical Research for Rare Diseases
Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: Direct instruction of trainees and new investigators in rare disease research methodology; Development of a reusable curriculum/syllabus on rare disease research methodology; Stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
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Rare Diseases and Scientific Inquiry print and web versions now available
ORDR is pleased to announce that the print version of the new middle school curriculum supplement, Rare Diseases and Scientific Inquiry, is available (U.S. addresses only) and can now be ordered from the NIH Office of Science Education (OSE) website. A downloadable version will available soon.
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Rare Disease Day at NIH 2012 archived videocast is now available
The NIH Rare Diseases Day VideoCast has been archived and can be found here.
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ORDR announces workshop on Natural History Studies of Rare Diseases
This workshop aims to bring together thought leaders in the design, conduct, and evaluation of natural history studies to discuss the role of these studies in the development of therapeutic candidates.
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Rare Diseases News from Google
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