National Institute of Child Health and Human Development (NICHD)
Fetal Therapy Symposium
April 17 – 18, 1997 • Bethesda, Maryland
Agenda
| Thursday, April 17 |
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| 8:30 a.m. | Welcome Felix de la Cruz, M.D. National Institute of Child Health and Human Development (NICHD) Stephen C. Groft, Pharm. D. Duane Alexander, M.D. Moderator |
| 8:45 a.m. | Overview Mark Evans, M.D. |
| 9:00 a.m. | The Ultrasonic Detection of Structural Abnormalities Mary D’Alton, M.D., Tufts University School of Medicine |
| 9:40 a.m. | First Trimester Embryoscopy I Professor Yves Dumez, Grolupe Hospitalier Couchin |
| 10:55 a.m. | First Trimester Embryoscopy II E. Albert Reece, M.D. Temple University School of Medicine |
| 11:15 a.m. | Evaluation and Therapies of Uropathies Mark Paul Johnson, M.D. Hutzel Hospital |
| 12:00 noon | Discussion Moderator Mary D’Alton, M.D. |
| 1:15 p.m. | 2nd Trimester Fetoscopic Intervention Ruben Quintero, M.D. Florida Perinatal Associates |
| 2:10 p.m. | Surgically Correctable Fetal Diseases Michael Harrison, M.D. University of California, San Francisco |
| 3:00 p.m. | Ethical Dimensions of the Fetus as a Patient Frank Chervenak, M.D. Cornell University Medical Center |
| 3:45 p.m. | Management of Fetal Lung Lesions Scott Adzick, M.D. Children’s Hospital of Philadelphia |
| 4:15 p.m. | Open Surgery for Fetal Sacrococcygeal Teratomas Alan Flake, M.D. Children’s Hospital of Philadelphia |
| Friday, April 18 |
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| 8:30 a.m. | Moderator Mark Evans, M.D. The Implications of Prenatal Diagnosis of Cardiac Disease in the
Human Fetus |
| 9:15 a.m. | Maternal PKU Lawrence Platt, M.D. Cedars-Sinai Medical Center |
| 10:00 a.m. | Metabolic Therapy Mark Evans, M.D. |
| 10:45 a.m. | Prenatal Therapy for Inborn Errors of Sterol and Protein Metabolism Mira Irons, M.D. New England Medical Center |
| 11:15 a.m. | Ethics in Fetal Therapy: A Historical Perspective John Fletcher, Ph.D. University of Virginia |
| 1:00 p.m. | In utero Hematopoietic Stem Cell Transplantation Alan Flake, M.D. |
| 2:00 p.m. | In utero Stem Cell Therapy Karin Blakemore, M.D. Johns Hopkins Hospital |
Participants
Scott Adzick, M.D. Karin Blakemore, M.D. Frank Chervenak, M.D. Mary D' Alton, M.D. Professor Yves Dumez Mark Evans, M.D. Alan Flake, M.D. John C. Fletcher, Ph.D. Michael Harrison, M.D. Mira Irons, M.D. Mark Paul Johnson, M.D. Charles Kleinman, M.D. Lawrence D. Platt, M.D. Ruben A. Quintero, M.D. E. Albert Reece, M.D. NIH Participants Duane Alexander, M.D. Felix de la Cruz, M.D., M.P.H. Stephen Groft, Pharm.D. Sumner J. Yaffe, M.D. |
Summary
| A symposium on FetaI Therapy was organized and cosponsored
by the Mental Retardation and Developmental Disabilities Branch of the National Institute
of Child Health and Human Development, and was held at the NIH on April 17-18, 1997 and
the NIH Office of Rare Diseases. This well attended conference brought together a
multidisciplinary group of investigators representing obstetrics, perinatology,
pediatrics, surgery, genetics, ethics, and other specialty groups. Presentations included
various techniques for prenatal diagnosis, such as ultrasonography and embryoscopy, as
well as surgical intervention, prenatal therapy for inborn errors of metabolism, in
utero stem cell therapy, and ethics in fetal therapy.
The proceedings of the conference are currently being edited and will be published as a book by the Parthenon Publishing Company. Although there are no immediate plans to publish a program announcement or an RFA (request for grant applications), NICHD staff has made informal solicitation for research grants on prenatal diagnosis and fetal therapy. Moreover, a follow-up conference is being planned by NICHD with programmatic co-sponsorship by the Society of Perinatal Obstetricians and the American Institute of Ultrasound in Medicine. |
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