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Other Names for this Disease
- Pierre Robin syndrome with congenital heart malformation and clubfoot
- Talipes equinovarus, atrial septal defect, robin sequence, and persistence of left superior vena cava
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On this page
Organizations Supporting this Disease
Social Networking Websites
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.