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Genetic and Rare Diseases Information Center (GARD)

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TARP syndrome

Other Names for this Disease
  • Pierre Robin syndrome with congenital heart malformation and clubfoot
  • Talipes equinovarus, atrial septal defect, robin sequence, and persistence of left superior vena cava
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Your Questions Answered

2 question(s) from the public on this disease have been answered. Submit a new question.
  • My 1 year old son and 21 year old brother were recently diagnosed with TARP syndrome. My mother and I have tried to find information on it, but with how rare it is, it is very difficult to find much. So far I have found a little information on one other living boy with TARP. I am just trying to find more information on this syndrome so maybe I will know more about my son and his condition. Click here for answer

  • Is it possible to be tested to see if you are a carrier of TARP?  If so, what medical centers test for it? Click here for answer