Other Names for this Disease
- Cerebral gigantism
- Distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development
Your QuestionI am a therapist in need of additional information regarding Sotos syndrome. Are there any support groups with local state chapters? I have a client that has been diagnosed with Sotos syndrome and I would like to refer the parents to a support group.
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Questions on this page
The following organizations provide support for individuals with conditions such as Sotos syndrome.
Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189
Toll -free: 1-888-246-7772
Web site: http://www.sotossyndrome.org/
Child Growth Foundation
2 Mayfield Avenue
London None W4 1PW
Telephone #: +44- 20-8 995 0257
E-mail: firstname.lastname@example.org or email@example.com
Web site: http://www.childgrowthfoundation.org
The Arc of the United States (with local state chapters)
1660 L Street, NW, Suite 301
Washington, DC 20036
Web site: http://www.thearc.org
PO Box 241956
Los Angeles CA 90024
Web site: http://www.madisonsfoundation.org
- Sotos syndrome. Genetics Home Reference. June 2006; http://ghr.nlm.nih.gov/condition/sotos-syndrome. Accessed 4/15/2011.