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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Branchiootorenal syndrome


Other Names for this Disease
  • BOR syndrome
  • Branchio oto renal syndrome
  • Branchiootorenal dysplasia
  • Melnick-Fraser syndrome
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Organizations


Organizations Supporting this Disease

  • American Association of Kidney Patients
    3505 E. Frontage Rd., Suite 315
    Tampa, FL 33607-1796
    Toll-free: 800-749-2257
    Telephone: 813-636-8100
    Fax: 813-636-8122
    E-mail: info@aakp.org
    Website: http://www.aakp.org/

  • American Kidney Fund, Inc.
    6110 Executive Boulevard
    Suite 1010
    Rockville, MD 20852
    Toll-free: 800-638-8299
    Telephone: 301-881-3052
    E-mail: helpline@kidneyfund.org
    Website: http://www.kidneyfund.org

  • National Association of the Deaf
    8630 Fenton Street Suite 820
    Silver Spring, MD 20910
    Telephone: 301-587-1788
    TTY: 301-587-1789
    Fax: 301-587-1791
    E-mail: NADinfo@nad.org
    Website: http://www.nad.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support