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Other Names for this Disease
- Brittle bone disease
- Fragilitas ossium
- Vrolik disease
- Osteogenesis imperfecta congenita microcephaly and cataracts
- Osteogenesis imperfecta Levin type
- Osteogenesis imperfecta type 1
- Osteogenesis imperfecta type 1A
- Osteogenesis imperfecta type 2A
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Organizations Supporting this Disease
Canadian Osteogenesis Imperfecta Society
128 Thornhill Crescent
Chatham, Ontario, Canada, N7L 4M3
Social Networking Websites
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.