Other Names for this Disease
- Congenital contractures of the digits
- Congenital ulnar drift
- Windswept hand
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- Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, GARD's How to Find a Disease Specialist fact sheet provides several ways to identify healthcare professionals who have experience with a particular condition. Click on the link to access this resource and learn more.
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- The American Society for Surgery of the Hand has a tool for locating hand surgeons. Click on the link to view this search tool.
- A National Support group for Arthrogryposis Multiplex Congenita (AVENUES) has a tool for locating physicians with an special interest in arthrogryposis. Click on the link to use this search tool.