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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Scleroderma

*

* Not a rare disease

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • American Autoimmune Related Diseases Association (AARDA)
    22100 Gratiot Avenue Eastpointe
    East Detroit, MI 48201-2227
    Toll-free: 800-598-4668
    Telephone: 586-776-3900
    Fax: 586-776-3903
    E-mail: aarda@aarda.org
    Website: http://www.aarda.org/

  • International Scleroderma Network (ISN)
    7455 France Ave So #266
    Edina, MN 55435-4702
    Toll-free: 800-564-7099
    Telephone: 952-583-5735
    E-mail: isn@sclero.org
    Website: http://www.sclero.org/

  • Scleroderma Foundation
    300 Rosewood Drive, Suite 105
    Danvers, MA 01923
    Toll-free: 800-722-HOPE (4673)
    Telephone: 978-463-5843
    Fax: 978-463-5809
    E-mail: sfinfo@scleroderma.org
    Website: http://www.scleroderma.org/

  • Scleroderma Research Foundation
    220 Montgomery Street, Suite 1411
    San Francisco, CA 94104
    Toll-free: 800-441-CURE (2873)
    Telephone: 415-834-9444
    Fax: 415-834-9177
    E-mail: http://www.srfcure.org/contact
    Website: http://www.srfcure.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.