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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Trabecular myopathy


Other Names for this Disease

  • Myopathy with lobulated fibers
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Muscular Dystrophy Family Foundation
    2330 North Meridien Street
    Indianapolis, IN 46208
    Toll-free: 800-544-1213
    Telephone: 317-923-6333
    Fax: 317-923-6334
    E-mail: mdff@mdff.org
    Website: http://www.mdff.org

  • Parent Project Muscular Dystrophy
    1012 North University Boulevard
    Middletown, OH 45042
    Toll-free: 800-714-5437
    Telephone: 513-424-0696
    Fax: 513-425-9907
    E-mail: pat@parentprojectmd.org
    Website: http://www.parentprojectmd.org

  • The Society for Muscular Dystrophy Information International
    P.O. Box 7490, Bridgewater
    Nova Scotia, B4V 2X6
    Canada
    Telephone: 902-685-3961
    Fax: 902-685-3962
    E-mail: smdi@auracom.com
    Website: http://www.nsnet.org/smdi/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Myopathy with lobulated fibers
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.