- Diaphyseal dysplasia 1, progressive
- Engelmann disease
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I have had Camurati Engelmann disease since I was 5 years-old. I experience severe pain, headaches, and vision loss. Surgery has been recommended to treat the bone thickening in my skull. Will the skull bones grow back together following surgery? How can I learn more about medications, surgical procedures, and other treatments that have been effective in treating people Camurati Englemann disease? Click here for answer
My mother-in-law was recently diagnosed with Camurati-Engelmann disease. Can you provide me with information about this condition? Click here for answer