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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Niemann-Pick disease type B


Other Names for this Disease
  • Niemann Pick disease type B
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Organizations


Organizations Supporting this Disease

  • Children Living with Inherited Metabolic Diseases (CLIMB)
    Climb Building
    176 Nantwich Road
    Crewe CW2 6BG
    United Kingdom
    Telephone: 0800 652 3181 (toll free)
    E-mail: info.svcs@climb.org.uk
    Website: http://www.climb.org.uk

  • National Niemann-Pick Disease Foundation, Inc.
    P.O. Box 49
    401 Madison Avenue, Suite B
    Ft. Atkinson, WI 53538
    Toll-free: 877-CURE-NPC (287-3672)
    Telephone: 920-563-0930
    Fax: 920-563-0931
    E-mail: nnpdf@nnpdf.org
    Website: http://www.nnpdf.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support