16p11.2 deletion syndrome
Other Names for this Disease
- Chromosome 16p11.2 deletion syndrome
- Microdeletion 16p11.2
- Monosomy 16p11.2
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.
On this page
- Simons VIP Connect is an online community for families with 16p11.2 deletions and duplications. Click on the link to learn more about this community and how to register.
Autism Society of America
4340 East-West Highway, Suite 350
Bethesda, MD 20814-3067
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
American Association on Intellectual and Developmental Disabilities
444 North Capitol Street, NW
Washington, DC 20001-1512
Toll-free: (800) 424-3688
Telephone: (202) 387-1968
Fax: (202) 387-2193