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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Pachyonychia congenita


Other Names for this Disease
  • Congenital pachyonychia
  • Pachyonychia congenita syndrome
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Conferences



ORDR-Sponsored Conferences

  • Pediatric Dermatology Research Alliance (PeDRA) Annual Conference, Friday, October 18, 2013 - Sunday, October 20, 2013
    Location: Westin O’Hare Hotel , Rosemont, IL
    Description: The goals of the PEDRA annual meetings are to provide an educational platform that will enhance the research skills of PeDRA investigators and establish a forum for the critical review of research proposals developed by PeDRA disease-focused groups and to create a bridge between basic scientists and clinicians to enhance opportunities for research. Each group will identify and prioritize the clinical needs and therapeutic opportunities.

  • 2013 International Pachyonychia Congenita Consortium (IPCC) Symposium, Thursday, February 14, 2013 - Sunday, February 17, 2013
    Location: Park City, UT
    Description: By bringing experts from around the world together, the 2013 symposium will create a powerful environment to formulate a clear path forward for cooperative clinical studies based on completed research or new research designed with clinical endpoints in mind.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.