Other Names for this Disease
- CLOVE syndrome
- Congenital lipomatous overgrowth - vascular malformation - epidermal nevi
- Congenital lipomatous overgrowth, vascular malformations, and epidermal nevi
- Congenital lipomatous overgrowth, vascular malformations, epidermal nevi, and skeletal/spinal abnormalities
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.