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Genetic and Rare Diseases Information Center (GARD)

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Adult neuronal ceroid lipofuscinosis

Other Names for this Disease
  • Adult NCL
  • ANCL
  • Kuf's disease
  • Neuronal ceroid lipofuscinosis 4
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Your Question

Is Kuf's a terminal disease?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the outlook for people with adult neuronal ceroid lipofuscinosis?

The symptoms of adult neuronal ceroid lipofuscinosis get worse over time, and this condition shortens a persons life expectancy.[1] Most sources state that a person with adult neuronal ceroid lipofuscinosis usually lives about 10 years after the symptoms begin.[2][3]
Last updated: 11/29/2012