Adult neuronal ceroid lipofuscinosis
- Adult NCL
- Kuf's disease
- Neuronal ceroid lipofuscinosis 4
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ORDR Co-Sponsored Conferences
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015
Location: Building 31, 6C, Room 6, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
American Society of Gene & Cell Therapy (ASGCT) 18th Annual Meeting, Wednesday, May 13, 2015 - Saturday, May 16, 2015
Location: New Orleans, LA
Description: From our plenary lectures, this year to be given by Drs. Steven Rosenberg and Anthony Atala, to our 19 scientific symposia featuring invited speakers from across our discipline, to our nightly abstract poster receptions, where the majority of the over 700 abstracts submitted to the Annual Meeting are presented, the ASGCT Annual Meeting is certain to be the premiere scientific meeting in our field.
14th International NCL Congress: Supporting US Based Scientists, Wednesday, October 22, 2014 - Sunday, October 26, 2014
Location: Córdoba, Argentina
Description: <p>The specific objectives are to: provide a forum to present the latest NCL scientific, clinical and translational research advances; promote opportunities for student and junior investigators to present their research; maximize the opportunities for interactions between members of the NCL research community through promoting discussion at poster sessions and a lively social program; promote links between NCL researchers and those working in other more common disease that may share similar mechanisms; bring together NCL researchers and clinicians with the NCL parent organizations and affected families, promoting clear and effective communication between these groups; and promote up-to-date diagnoses of NCLs in low and middle income countries.</p>