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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Adult neuronal ceroid lipofuscinosis


Other Names for this Disease

  • Adult NCL
  • ANCL
  • Kuf's disease
  • Neuronal ceroid lipofuscinosis 4
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Conferences


ORDR-Sponsored Conferences

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, Winter 2014
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • 14th International NCL Congress: Supporting US Based Scientists, Wednesday, October 22, 2014 - Sunday, October 26, 2014
    Location: Córdoba, Argentina
    Description: <p>The specific objectives are to: provide a forum to present the latest NCL scientific, clinical and translational research advances; promote opportunities for student and junior investigators to present their research; maximize the opportunities for interactions between members of the NCL research community through promoting discussion at poster sessions and a lively social program; promote links between NCL researchers and those working in other more common disease that may share similar mechanisms; bring together NCL researchers and clinicians with the NCL parent organizations and affected families, promoting clear and effective communication between these groups; and promote up-to-date diagnoses of NCLs in low and middle income countries.</p>

Other Names for this Disease
  • Adult NCL
  • ANCL
  • Kuf's disease
  • Neuronal ceroid lipofuscinosis 4
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.