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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Pontocerebellar hypoplasia


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Organizations


Organizations Supporting this Disease

  • Brain Foundation
    P O Box 579
    Crows Nest, NSW
    1585 Suite 21
    Regent House 37-43
    Alexander Street Crows Nest, NSW 2065
    Australia
    Telephone: 61 2 9437 5967
    Fax: 61 2 9437 5978
    E-mail: info@brainaustralia.org.au
    Website: http://www.brainaustralia.org.au/

  • Children's Brain Disease Foundation
    Parnassus Heights Medical Building, Suite 900
    San Francisco, CA 94117
    Telephone: 415-665-3003
    Fax: 415-665-3003
    E-mail: jrider6022@aol.com

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support