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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Hereditary diffuse leukoencephalopathy with spheroids


Other Names for this Disease

  • Adult-onset leukodystrophy with neuroaxonal spheroids
  • Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia
  • Autosomal dominant leukoencephalopathy with neuroaxonal spheroids
  • HDLS
  • Hereditary diffuse leukoencephalopathy with axonal spheroids
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • United Leukodystrophy Foundation (ULF)
    224 North Second Street
    Suite 2
    DeKalb, IL 60115
    Toll-free: 800-728-5483
    Telephone: 815-748-3211
    Fax: 815-748-0844
    E-mail: office@ulf.org
    Website: http://www.ulf.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Adult-onset leukodystrophy with neuroaxonal spheroids
  • Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia
  • Autosomal dominant leukoencephalopathy with neuroaxonal spheroids
  • HDLS
  • Hereditary diffuse leukoencephalopathy with axonal spheroids
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.