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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Juvenile amyotrophic lateral sclerosis


Other Names for this Disease
  • Amyotrophic lateral sclerosis, juvenile
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News & Events


ORDR Co-Sponsored Conferences

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015
    Location: Building 31, 6C, Room 6, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • 2015 Muscle: Excitation/Contraction Coupling Gordon Research Conference & Gordon Research Seminar, Saturday, May 30, 2015 - Friday, June 05, 2015
    Location: Sunday River, Newry, ME
    Description: The 2015 Gordon Research Conference (GRC) and Gordon Research Seminar (GRS) on Muscle: Excitation/Contraction Coupling (ECC) will once again bring together established leaders and new investigators from around the globe to present their latest unpublished research, as well as engage in meaningful scientific and social interactions. This is the premier meeting of basic and translational scientists interested in the molecular mechanisms of ECC and how defects in this process lead to debilitating and life-threatening muscle disorders.

  • American Society of Gene & Cell Therapy (ASGCT) 18th Annual Meeting, Wednesday, May 13, 2015 - Saturday, May 16, 2015
    Location: New Orleans, LA
    Description: From our plenary lectures, this year to be given by Drs. Steven Rosenberg and Anthony Atala, to our 19 scientific symposia featuring invited speakers from across our discipline, to our nightly abstract poster receptions, where the majority of the over 700 abstracts submitted to the Annual Meeting are presented, the ASGCT Annual Meeting is certain to be the premiere scientific meeting in our field.

  • Economic Considerations in the Development of Therapies for Neuromuscular Disease, Sunday, September 21, 2014 - Tuesday, September 23, 2014
    Location: Beaver Hollow Conference Center, Java Center, NY
    Description: <p>The goals of the conference are:<span>&nbsp; </span>1.) To provide an informal environment away from competing activities for the interaction/ development of collaborations among established investigators and between senior and new/junior investigators, and to present a collaborative environment for new project development among investigators.<span>&nbsp; </span>2.) To offer senior investigators opportunities to determine the appropriateness of sites/investigators to participate in new trials, providing an entry point for junior trainees/investigators to become involved in studies.<span>&nbsp; </span>3.) To provide an opportunity for industry representatives to interact with clinical investigators to discuss collaboration.<span>&nbsp; </span>These discussions will increase investigator involvement with new industry therapeutics.</p>

  • Novel Molecular Mechanisms of Neuromuscular Disease: Implications for Therapy, Monday, September 16, 2013 - Wednesday, September 18, 2013
    Location: Oxford, England
    Description: This conference will bring new collaborative opportunities and substantive scientific information to neuromuscular investigators. It will provide senior investigators, NIH program staff, and patient advocacy group/foundation representatives opportunities to meet with junior/trainee investigators who are in the process of developing careers in clinical/translational investigation. Trainees will interact with leaders in the field as they discuss innovative methodology designed to meet the challenges of studies of uncommon diseases and provide perspective on clinical studies in various phases of development. Younger investigators will be profiled during a hot topics session. Furthermore, the poster sessions, the discussions after each session, the meals and other informal settings offer them a chance to question and to present their own ideas.

Other Names for this Disease
  • Amyotrophic lateral sclerosis, juvenile
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.