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Genetic and Rare Diseases Information Center (GARD)

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Juvenile amyotrophic lateral sclerosis

Other Names for this Disease
  • Amyotrophic lateral sclerosis, juvenile
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How might juvenile amyotrophic lateral sclerosis be treated?

Treatments and therapies are available to relieve symptoms and improve the quality of life of people with juvenile ALS. Medications, such as those that reduce fatigue and ease muscle cramps are available. Physical therapy and special equipment can be helpful. Multidisciplinary teams of health care professionals such as physicians; pharmacists; physical, occupational, and speech therapists; nutritionists; and social workers can help to develop personalized treatment plans.[1]

While the Food and Drug Administration (FDA) has approved riluzole (Rilutek) for treatment of ALS, we found limited information regarding its use for juvenile ALS. We recommend that you discuss any questions regarding the risk/benefits of this drug with your healthcare provider.

Last updated: 7/8/2013

  1. Donkervoort S, Siddique T. Amyotrophic Lateral Sclerosis. GeneReviews . 2009; Accessed 4/12/2011.