Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Cylindrical spirals myopathy


Other Names for this Disease

  • Myotonic myopathy with cylindrical spirals
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Muscular Dystrophy Association
    3300 East Sunrise Drive
    Tucson, AZ 85718-3208
    Toll-free: 800-572-1717
    TTY: 1-800-572-1717
    E-mail: mda@mdausa.org
    Website: http://www.mdausa.org/

  • Muscular Dystrophy Family Foundation
    2330 North Meridien Street
    Indianapolis, IN 46208
    Toll-free: 800-544-1213
    Telephone: 317-923-6333
    Fax: 317-923-6334
    E-mail: mdff@mdff.org
    Website: http://www.mdff.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Myotonic myopathy with cylindrical spirals
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.