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Genetic and Rare Diseases Information Center (GARD)

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Autosomal dominant neuronal ceroid lipofuscinosis 4B

Other Names for this Disease
  • Adult neuronal ceroid lipofuscinosis 4B
  • Ceroid lipofuscinosis, neuronal, 4B, autosomal dominant
  • Ceroid lipofuscinosis, neuronal, Parry type
  • CLN4B
  • Kuf's disease type B
More Names
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Your Question

Is Kuf's a terminal disease?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the outlook for people with adult neuronal ceroid lipofuscinosis?

The symptoms of adult neuronal ceroid lipofuscinosis get worse over time, and this condition shortens a persons life expectancy.[1] Most sources state that a person with adult neuronal ceroid lipofuscinosis usually lives about 10 years after the symptoms begin.[2][3]
Last updated: 11/29/2012