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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Craniodiaphyseal dysplasia


See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Children's Craniofacial Association
    13140 Coit Road Suite 517
    Dallas, TX 75240
    Toll-free: 800-535-3643
    Telephone: 214-570-9099
    Fax: 214-570-8811
    E-mail: contactCCA@ccakids.com
    Website: http://www.ccakids.com/

  • European Skeletal Dysplasia Network
    Wellcome Trust Centre for Cell-Matrix Research
    Faculty of Life Sciences
    University of Manchester
    Michael Smith Building
    Oxford Road
    Manchester M13 9PT
    United Kingdom
    Telephone: 0161 276 3202
    Fax: 0161 276 4058
    E-mail: info@esdn.org
    Website: http://www.esdn.org/eug/Home

  • FACES: The National Craniofacial Association
    PO Box 11082
    Chattanooga, TN 37401
    Toll-free: 800-332-2373
    Telephone: 423-266-1632
    E-mail: faces@faces-cranio.org
    Website: http://www.faces-cranio.org/

  • World Craniofacial Foundation
    P.O. Box 515838
    Dallas, TX 75251-5838
    Toll-free: 800-533-3315
    Telephone: 972-566-6669
    Fax: 972-566-3850
    E-mail: info@worldcf.org
    Website: http://www.worldcf.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.