Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.


Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Stargardt disease

Other Names for this Disease
  • Juvenile onset macular degeneration
  • Stargardt macular dystrophy
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.


Organizations Supporting this Disease

  • American Macular Degeneration Foundation
    PO Box 515
    Information page about Stargardt disease
    Northampton, MA 01061-0515
    Telephone: 413-268-7660

  • Foundation Fighting Blindness
    7168 Columbia Gateway Drive, Suite 100
    Columbia, MD 21046
    Toll-free: 800-683-5555
    Telephone: 410-423-0600 (local)
    TTY: 800-683-5551

  • Lighthouse International
    111 E 59th Street
    New York, NY 10022-1202
    Toll-free: 800-829-0500
    Telephone: 212-821-9200
    TTY: 212-821-9713
    Fax: 212-821-9707

  • Macular Degeneration Foundation
    PO Box 531313
    Henderson, NV 89053
    Telephone: 888-633-3937
    Fax: 702-450-3396

Social Networking Websites

  • is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support