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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Walker-Warburg syndrome


Other Names for this Disease
  • Cerebroocular dysgenesis
  • Cerebroocular dysplasia muscular dystrophy syndrome
  • Chemke syndrome
  • COD-MD syndrome
  • Hard +/- E syndrome
More Names
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Organizations


Organizations Supporting this Disease

  • Cure CMD - Congenital Muscular Dystrophy
    P.O. Box 701
    Olathe, KS 66051
    Telephone: 307-END-CMD0(zero)
    E-mail: info@curecmd.com
    Website: http://curecmd.org/

  • Muscular Dystrophy Family Foundation
    2330 North Meridien Street
    Indianapolis, IN 46208
    Toll-free: 800-544-1213
    Telephone: 317-923-6333
    Fax: 317-923-6334
    E-mail: mdff@mdff.org
    Website: http://www.mdff.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support