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Genetic and Rare Diseases Information Center (GARD)

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Familial hemiplegic migraine type 1

Other Names for this Disease
  • FHM1
  • Hemiplegic migraine, familial type 1
  • MHP1
  • Migraine, familial hemiplegic 1, with progressive cerebellar ataxia
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Your Question

I have been diagnosed with familial hemiplegic migraine.  Even though I have been taking medication, I am experiencing unsteadiness, headache pain, facial drooping, and I can't walk without getting off balance. It is normal to have these symptoms for three weeks when taking medication for the condition? Will this condition go away with age?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

It is normal to continue to have symptoms when taking medications for familial hemiplegic migraine?

The migraines associated with this condition can sometimes be difficult to treat. We recommend that you consult with a migraine specialist who has experience treating individuals with familial hemiplegic migraine.
Last updated: 9/12/2013

Do the attacks associated with familial hemiplegic migraine go away with age?

According to the GeneReview article on familial hemiplegic migraine, affected individuals tend to experience fewer attacks as they get older.[1]
Last updated: 9/12/2013

How can I find a migraine specialist in my area?

The National Migraine Association maintains a list of migraine and headache specialists and clinics in the United States at the following link:
Last updated: 9/12/2013