Other Names for this Disease
- Asphyxiating thoracic dystrophy
- Asphyxiating thoracic dystrophy of the newborn
- Chondroectodermal dysplasia-like syndrome
- Infantile thoracic dystrophy
On this page
- The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
- ClinicalTrials.gov lists trials that are studying or have studied Jeune syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.