Other Names for this Disease
News & Events
ORDR Co-Sponsored Conferences
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
2013 LAM Symposium, Friday, April 12, 2013 - Sunday, April 14, 2013
Location: The Westin Cincinnati, Cincinnati, OH
Description: The goals of this conference are to provide a forum for leading experts to discuss the molecular and cellular basis of LAM, to review the clinical management of LAM, and to present cutting-edge research. The specific aims are: 1) to discuss research developments in LAM, 2) to attract new investigators from parallel fields to LAM research, 3) to identify promising new LAM research directions, and 4) to educate patients and family members about research.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
2012 International LAM Research Conference , Friday, April 20, 2012 - Sunday, April 22, 2012
Location: The Westin Hotel, Cincinnati, OH
Description: Anticipated goals of this conference: to provide a forum for leading experts to discuss the molecular and cellular basis of LAM, review the clinical management of LAM, to present cutting edge research, to integrate concepts and to identify creative and innovative research directions.
2011 International LAM Research Conference , Friday, April 08, 2011 - Sunday, April 10, 2011
Location: The Westin Hotel, Cincinnati, Ohio
Description: The goals of this conference were to provide a forum for leading experts to discuss the molecular and cellular basis of lymphangioleiomyomatosis (LAM), to review the clinical management of LAM, to present cutting edge research, to integrate concepts, and to identify creative and innovative research directions.
2010 NHLBI/LAM Foundation International Lymphangioleiomyomatosis Research , Friday, April 09, 2010 - Sunday, April 11, 2010
Location: Westin Hotel, Cincinnati, Ohio
Description: The broad objectives for the 2010 LAM Research Conference were to review research developments in lymphangioleiomyomatosis (LAM), attract new investigators to LAM research, identify promising new LAM research directions, and attempt to reach consensus on difficult clinical issues. The investigators thought that a 2010 LAM Research Conference was needed to sustain the momentum that has brought the LAM field from obscurity to trials based on molecular targets. The advances in understanding of the molecular and cellular basis of the disease have been remarkable, and the basic science community, the clinical science community, and LAM patients are all aligned to continue to address this problem in an aggressive, cooperative, and intelligent manner. They were confident that the 2010 LAM Research Conference would chart the course for new research directions in LAM, assist the clinical community in arriving at consensus on the optimal management of LAM, and provide hope to those affected by the disease.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
2007 LAM Foundation Lymphangioleiomyomatosis International Research Conference, Friday, April 20, 2007 - Sunday, April 22, 2007
Location: Cincinnati, OH
Description: This meeting brought together basic scientists working in different disciplines pertinent to lymphangioleiomyomatosis (LAM) with pharmaceutical experts from industry, clinical investigators, patients, and other advocates to advance research on understanding and treating LAM. The ultimate goal was to identify new targets for therapeutic interventions.
Workshop on Lymphangioleiomyomatosis (LAM), Wednesday, June 25, 1997 - Thursday, June 26, 1997
Location: Bethesda, MD