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2 question(s) from the public on this disease have been answered. Submit a new question.
Recently, I had an abdominal ultrasound performed and the doctors found what they believe is a small angiomyolipoma. My doctor told me not to worry about it and just to have a follow up in 6 months to make sure it didn't grow in size. While online trying to figure out what an angiomyolipoma was, I came upon LAM, a disease that I previously knew nothing about. What most concerned me was that sporadic LAM is most common in young women (I'm in my 20's) and many of them also have renal angiomyolipoma. While the median age for someone to get an angiomylipoma is mid-50s. I don't believe I have any symptoms of LAM, but still worry about this risk. I guess what I am looking for is some more definitive information? Click here for answer
Please send me any information regarding treatment and/or clinical trials for this rare disease. Click here for answer