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Genetic and Rare Diseases Information Center (GARD)

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Tubular aggregate myopathy

Other Names for this Disease
  • Myopathy, tubular aggregate
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What is the typical prognosis (chance for recovery) of people with tubular aggregate myopathy?

The severity of tubular aggregate myopathy varies from patient to patient. In general, it can be a slowly progressive and chronic disease, however at least one case report describes a patient who completely recovered with a period of steroid treatment.[1]
Last updated: 10/26/2011

  1. Gilchrist JM, Ambler M, Agatiello P. Steroid-responsive tubular aggregate myopathy. Muscle & Nerve. 1991;