Other Names for this Disease
- Aseptic necrosis
Your QuestionMy husband has had osteochondritis dissecans for a number of years and has undergone multiple surgeries. His condition is causing him more pain and disability than ever. He can hardly walk without assistance. He's been recommended knee replacements, but our insurance won't cover this surgery. Is there any advice that you can give me? I'm not sure how I can help him.
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
Questions on this page
- What is osteochondritis dissecans?
- Are there organizations that can give us information and resources to help us learn about the management of chronic pain?
- How can I find nonprofit organizations that provide information on obtaining financial aid for medical treatments?
- How can I learn more about participating in clinical trials at the National Institutes of Health?
Yes. Additional information and supportive resources for chronic pain can be obtained from the following organizations:
The Mayday Pain Project
Web site: http://www.painandhealth.org
American Chronic Pain Association (ACPA)
Web site: http://www.theacpa.org
National Foundation for the Treatment of Pain
1330 Skyline Drive, #21
Monterey, CA 93940
Web site: http://www.paincare.org
American Pain Foundation
201 North Charles Street
Baltimore, MD 21201
Toll-free: 888-615-PAIN (7246)
Web site: http://www.painfoundation.org
National Patient Advocate Foundation
725 15th St. NW, Tenth Floor
Washington DC, 20005
Web site: http://www.npaf.org
Patient Advocate Foundation
700 Thimble Shoals Boulevard Suite 200
Newport News, VA 23606
Web site: http://www.patientadvocate.org
Patient Services Incorporated
P.O. Box 1602 Midlothian, VA 23113
Web site: http://www.uneedpsi.org/
Patient Access Network Foundation
P.O. Box 221858
Charlotte, NC 28222
Web site: http://www.patientaccessnetwork.org/
The Healthwell Foundation
P.O. Box 4133
Gaithersburg, MD 20878
Web site: http://www.healthwellfoundation.org/index.aspx
In addition, you may find the following resources to be helpful and may want to speak with your state or county health department or social workers at your local hospital to request more information on available resources.
DisabilityInfo.gov provides quick and easy access to comprehensive information about disability programs, services, laws and benefits. You can search for medical resources by state at the following link.
MedlinePlus is the National Library of Medicine Web site designed to help you research your health questions. You can find a list of financial assistance resources at the following link.
Medicaid waivers are state-run programs that use federal and state funds to pay for health care for people with certain health conditions. In some states, families can apply for a medicaid waiver that waives the family income and looks only at the disabled person's income. This allows people who would otherwise be ineligible for Medicaid to receive medical care. Most states have some type of Medicaid waiver program. To find out more about Medicaid waiver programs in general, as well as specific state programs, visit the Family Voices Web site, a nonprofit organization that aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities:
To find more information about state-specific Medicaid waiver and demonstration programs, visit The Centers for Medicare and Medicaid Services Web site.
The Georgetown University Health Policy Institute has written a consumer guide for getting and keeping health insurance for each state and the District of Columbia. These consumer guides are available on the Health Policy Institute’s Web site and are updated periodically as changes in federal and state policy warrant.
Health Care Choices provides information to the public on selecting and using various types of health insurance and managed care plans.
Health Care Choices
P.O. Box 21039
Columbus Circle Station
New York, NY 10023
Web site: www.healthcarechoices.org
You can search a database of clinical trials being conducted by the NIH at the Clinical Center in Bethesda, Maryland at the following link. You can also contact the Patient Recruitment and Public Liaison Office directly at 1-800-411-1222 to speak with a specialist, who can help you determine if your husband is eligible for any clinical trials.
In addition, the NIH through the National Library of Medicine has developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. You can search this database to find clinical trials at the NIH Clinical Center as well as federally and privately supported trials being conducted at universities and medical centers throughout the United States and around the world. To find clinical trials, click on the link above and type the disease name as your search term.
There is a study titled "Cartilage Autograft Implantation System (CAIS) for the Repair of Knee Cartilage Through Cartilage Regeneration" that may be of interest to you. Click on the study title to learn more. Review its "eligibility" criteria to determine its appropriateness. Use the study's contact (at the bottom of the page) to obtain additional information).
You can check these sites often for regular updates.
If your husband is interested in enrolling in a clinical trial, he can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
A tutorial about clinical trials for cancers that can also help answer your questions can be found at the following link from the National Library of Medicine/Medlineplus: http://www.nlm.nih.gov/medlineplus/tutorials/cancerclinicaltrials/htm/lesson.htm
Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases (ORD), National Institutes of Health.
- Osteochondritis dissecans. American Academy of Orthopaedic Surgeons. 03/2012; http://orthoinfo.aaos.org/topic.cfm?topic=A00610. Accessed 10/8/2013.