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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Parsonage Turner syndrome


Other Names for this Disease
  • Acute brachial neuritis
  • Acute brachial neuritis syndrome
  • Acute brachial radiculitis syndrome
  • Acute shoulder neuritis
  • Neuralgic amyotrophy
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Your Question

I have been recovering from Parsonage Turner syndrome for years. I still have some pain, the fatigue is still with me and my quality of life is compromised. Can this develop into something else? Also, is it normal that I still have fatigue after 5 plus years?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the long-term outlook for individuals with Parsonage Turner syndrome?

It has been reported that approximately 80% of affected individuals recover functionally within 2 years of the condition onset; approximately 90% recover functionally within 3 years. When the condition is bilateral (affecting both sides of the body), the outcome tends to be less favorable than when it is unilateral. Additionally, lesions of the lower trunk tend to have a less favorable prognosis than do those of the upper trunk.[1]

In 2009, a study reported that in recent years it has become clear that this condition has a less optimistic prognosis than assumed. In this study, about a quarter to a third of the affected individuals reported significant long-term pain and fatigue, and half to two thirds still experienced impairments in daily life. Over one third of the individuals suffered from severe fatigue.[2] The authors stated that this study confirms that a significant proportion of affected individuals has persistent pain and fatigue in the first several years after their last attack. Individuals suffering from comorbid conditions seem especially prone to developing persisting pain and fatigue and tended to have more disabilities and physical impairments in daily life.[2]
Last updated: 1/15/2013

References
  • Nigel L Ashworth. Brachial Neuritis. Medscape Reference. January 18, 2012; http://emedicine.medscape.com/article/315811-overview. Accessed 1/15/2013.
  • van Alfen N, van der Werf SP, van Engelen BG. Long-term pain, fatigue, and impairment in neuralgic amyotrophy. Arch Phys Med Rehabil. March 2009; 90(3):435-439.