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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Amniotic band syndrome


Other Names for this Disease
  • ADAM syndrome
  • Amniotic bands
  • Amniotic bands sequence
  • Amniotic deformity-adhesion-mutilation syndrome
  • Congenital constricting bands
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Treatment

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How might amniotic band syndrome be treated?

Mild cases may not require treatment, however all bands need monitoring as growth occurs to watch for progressive constriction and swelling. Other constrictions may require surgical management; surgical options will vary depending on the abnormality. People with amniotic band syndrome who have amputations may benefit from the use of prosthetics.[1]
Last updated: 10/3/2013

References
  1. Do T. Streeter Dysplasia. Medscape Reference. February 7, 2012; http://emedicine.medscape.com/article/1260337-overview. Accessed 11/1/2013.


Clinical Trials & Research for this Disease

  • The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
  • Orphanet is a European reference portal for information on rare diseases and orphan drugs.  Access to this database is free of charge.
Other Names for this Disease
  • ADAM syndrome
  • Amniotic bands
  • Amniotic bands sequence
  • Amniotic deformity-adhesion-mutilation syndrome
  • Congenital constricting bands
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.