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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Pheochromocytoma-islet cell tumor syndrome


Other Names for this Disease

  • Pheochromocytoma and islet cell tumor of the pancreas
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • The Children's Tumor Foundation
    120 Wall Street, 16th floor
    New York, NY 10005-3904
    Toll-free: 800-323-7938
    Telephone: 212-344-6633
    Fax: 212-747-0004
    E-mail: info@ctf.org/
    Website: http://www.ctf.org/

  • The Neurofibromatosis Association
    Quayside House
    38 High Street, Kingston-on-Thames
    SURREY KT1 1HL
    United Kingdom
    Telephone: 44(0)208 439 1234
    Fax: 44(0)208 439 1200
    E-mail: nfa@zetnet.co.uk
    Website: http://www.nfauk.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Pheochromocytoma and islet cell tumor of the pancreas
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.