The Children's Tumor Foundation
95 Pine Street, 16th floor
Toll-free: 800-323-7938 Telephone: 212-344-6633 Fax: 212-747-0004 E-mail: email@example.com/ Website: http://www.ctf.org/
The Neurofibromatosis Association
38 High Street, Kingston-on-Thames
SURREY KT1 1HL
Telephone: 44(0)208 439 1234 Fax: 44(0)208 439 1200 E-mail: firstname.lastname@example.org Website: http://www.nfauk.org
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.