Other Names for this Disease
- Congenital cutaneous neurilemmomatosis
- Neurilemmomatosis congenital cutaneous
- Neurofibromatosis type 3
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There is currently no accepted medical treatment or drug for schwannomatosis, but surgical management can sometimes be effective. Medication treatment with gabapentin or pregabalin and use of short acting opioids and/or nonsteroidal anti-inflammatories for pain can be successful for many patients. Pain usually improves when tumors are removed completely, although the pain may recur should new tumors form. Finally, surgery may put patients at risk of further neurologic problems. Therefore, surgical removal of schwannomas in patients with schwannomatosis is generally a last resort and is highly individualized and dependent on the size, location and complexity of tumors.
Last updated: 3/14/2014
- Yohay K, Bergner A.. Schwannomatosis. UpToDate. March 3, 2014; http://www.uptodate.com/contents/schwannomatosis. Accessed 3/14/2014.
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