- Congenital cutaneous neurilemmomatosis
- Neurilemmomatosis congenital cutaneous
- Neurofibromatosis type 3
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I have a segmental neuromatosis/schwannomatosis. The last 10 years the pain has been constant and gradually becoming worse. The last six moths have been dreadful. I would like to know what treatments work for others with the same condition. I have read some research work, but it is never anything like what I have got. I believe that surgery can be done? How successful is this? What medication works the best? Click here for answer