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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Tibial aplasia ectrodactyly hydrocephalus


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Conferences


ORDR-Sponsored Conferences

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

  • Improving Outcomes in Hydrocephalus: Bridging the Gap between Basic Science and Clinical Management, Monday, September 14, 2009 - Tuesday, September 15, 2009
    Location: Baltimore, MD
    Description: The major goal of this conference was to understand the critical pathophysiology of hydrocephalus in order to advance clinical applications.

  • Hydrocephalus: Myths, New Facts, Clear Directions, Thursday, September 29, 2005 - Saturday, October 01, 2005
    Location: Marriott White Flint, Bethesda, MD
    Description: Approximately 90% of infants born with spina bifida have hydrocephalus. Other congenital abnormalities such as aqueductal stenosis due to posterior fossa developmental disorders can also cause hydrocephalus. Participants discussed current knowledge gaps in clinical hydrocephalus research.

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.