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Diseases

Genetic and Rare Diseases Information Center (GARD)

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VLCAD deficiency


Other Names for this Disease
  • Very long-chain acyl-CoA dehydrogenase deficiency
  • VLCADD
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Organizations


Organizations Supporting this Disease

  • FOD (Fatty Oxidation Disorder) Family Support Group
    P.O. Box 54
    Okemos, MI 48805-0054
    Telephone: 517-381-1940
    Fax: 866-290-5206
    E-mail: deb@fodsupport.org
    Website: http://www.fodsupport.org

  • United Mitochondrial Disease Foundation
    8085 Saltsburg Road, Suite 201
    Pittsburgh, PA 15239
    Toll-free: 888-317-8633
    Telephone: 412-793-8077
    Fax: 412-793-6477
    E-mail: info@umdf.org
    Website: http://www.umdf.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support