Cleft Palate Foundation
1504 East Franklin Street, Suite 102
Toll-free: 800-242-5338 Telephone: 919-933-9044 Fax: 919-933-9604 E-mail: firstname.lastname@example.org Website: http://www.cleftline.org/
National Foundation for Ectodermal Dysplasias
6 Executive Drive
Telephone: 618-566-2020 E-mail: email@example.com Website: http://nfed.org/
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.