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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Amyotrophic lateral sclerosis


Other Names for this Disease

  • ALS
  • ALS1
  • Amyotrophic lateral sclerosis type 1
  • Lou Gehrig disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Amyotrophic Lateral Sclerosis Association (ALSA)
    27001 Agoura Road
    Suite 250
    Calabasas Hills, CA 91301-5104
    Telephone: 800-782-4747 (patient hotline)
    Fax: 818-880-9006
    E-mail: alsinfo@alsa-national.org
    Website: http://www.alsa.org

  • Amyotrophic Lateral Sclerosis Society of Canada
    265 Yorkland Boulevard
    Suite 300
    Toronto Ontario M2J 1S5
    Canada
    Telephone: 800-267-4ALS (800-267-4257)
    Fax: 416-497-1256
    E-mail: SI@als.ca
    Website: http://www.als.ca

  • Frontotemporal Lobar Degeneration Association (FTLDA)
    8151 Broadway, Suite 102
    San Antonio, TX 78209
    Telephone: 210-824-9510
    E-mail: oxford@ftlda.org
    Website: http://www.ftlda.org/

  • Les Turner ALS Foundation
    5550 West Touhy Avenue
    Suite 302
    Skokie, IL 60077-3254
    Telephone: 888-ALS-1107 (888-257-1107)
    Fax: 847-679-9109
    E-mail: info@lesturnerals.org
    Website: http://www.lesturnerals.org/

  • Muscular Dystrophy Association - ALS Division
    3300 East Sunrise Drive
    Amyotrophic Lateral Sclerosis
    Tucson, AZ 85718-3208
    Telephone: 800-572-1717 or 800-344-4863
    Fax: 520-529-5300
    E-mail: mda@mdausa.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • ALS
  • ALS1
  • Amyotrophic lateral sclerosis type 1
  • Lou Gehrig disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.