Other Names for this Disease
- Bannayan-Zonana syndrome
- Macrocephaly multiple lipomas and hemangiomata
- Macrocephaly pseudopapilledema and multiple hemangiomas
On this page
Breast Cancer Network of Strength
212 West Van Buren
Chicago, IL 60607
The National Breast Cancer Coalition/Fund
1101 17th Street Northwest
Washington, DC 20036
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
American Cancer Society
1599 Clifton Road NE
Atlanta, GA 30329